Wednesday 12th February 2014
Moore Street Surgery has received the following update from the Care.data Programme about the 'Better information means better care' leaflet which has recently been distributed to patients.
Update for GP practices on the 'Better Information means better care' leaflet
As you are aware, every household in England is receiving the leaflet 'Better Information means better care leaflet' during January. The leaflet helps support GP practices in raising awareness amongst patients about how their information is used for purposes beyond their direct care, including for the care.data programme.
We thought you might find it helpful if we provided an update on progress, and reminded you about a number of resources that are available to support GP practices and patients.
Patient Information Line
The national patient information line went live on 6th January. The five most common questions have been:
1. Can I change my mind? (FAQ 12)
2. I can't get to my practice to object, what should I do? (FAQ 10)
3. How long have I got to decide if I want to object? (FAQ 11)
4. What is the secure environment mentioned in the leaflet? (FAQ 3)
5. Do I have to do anything if I want my information to be used? (FAQ 17)
If your patients have any questions, you can refer them to the national patient information line (0300 456 3531) or to the patient FAQs. Don't forget accessible formats including Braille, audio and large print are available from the patient information line. In addition, large print and audio formats are available from the patient website.
It is important that we communicate with patients in a range of formats. So today, we are launching an animation to support awareness-raising. You are welcome to add it to your GP practice website or to any other audiovisual channels you use to communicate with your patients (e.g. TVs in waiting areas).
The main aims of the animation are;
(a) to explain the care.data programme
(b) to remind patients that they have a choice.
Note that subtitles are available.
There are a number of public misconceptions about how data will be used. These are mostly due to a confusion around the different types of data that will be released by the Health and Social Care Information Centre (HSCIC). To make it easier for the public to understand, we are referring to the different types as: red (personal confidential data), amber (pseudonymised) and green (aggregated or anonymised) data. Each 'colour' of data is protected by a different suite of privacy safeguards. For an explanation, see this blog by the Chief Data Officer.
For the avoidance of doubt:
- Data will not be made available for the purposes of selling or administering any kind of insurance.
- Data will not be shared or used for marketing purposes (FAQ 23).
- NHS England and the HSCIC will not profit from providing data to outside organisations.
Privacy Impact Assessment
For patients who wish to understand more about how we protect their data, we have published a privacy impact assessment for the care.data programme. This document provides details about the privacy implications of the programme (both negative and positive) and explains how we are mitigating each risk. In addition, the HSCIC has published a privacy impact assessment for all the personal data it processes, which includes the data extracted for care.data.
Summary Care Record
We are aware that there continues to be some confusion about the differences between the Summary Care Record and the use of data for purposes beyond direct care. For details, see FAQ 14 and the final section of this guidance.